Scott Adams
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About Me
Scott Adams was diagnosed with celiac disease in 1994, and, due to the nearly total lack of information available at that time, was forced to become an expert on the disease in order to recover. In 1995 he launched the site that later became Celiac.com to help as many people as possible with celiac disease get diagnosed so they can begin to live happy, healthy gluten-free lives. He is co-author of the book Cereal Killers, and founder and publisher of the (formerly paper) newsletter Journal of Gluten Sensitivity. In 1998 he founded The Gluten-Free Mall which he sold in 2014. Celiac.com does not sell any products, and is 100% advertiser supported.
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Scott Adams reacted to a post in a topic:
Any help is appreciated.
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Scott Adams reacted to a post in a topic:
Any help is appreciated.
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I will only comment on the possibility that your symptoms are related to nerve damage caused by gluten, AKA gluten ataxia, and if that is the case, besides needing to be 100% gluten-free you likely will also need to also take various supplements to help you recover. The most common nutrient deficiencies associated with celiac disease that may lead...
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Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy, and approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. and this recent s...
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Scott Adams reacted to a post in a topic:
What do I have?!
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Welcome to the forum. So you've been gluten-free for a while, is that correct? You mentioned a negative celiac disease test, can you share more about which test you took, and if possible, can you share the result with us, including the reference range of the test given? If you were not eating enough gluten before the test, it's possible that you got...
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Scott Adams reacted to a post in a topic:
Gluten after all?
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Marsh 1?
Scott Adams replied to karalisa78's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hopefully your doctor will clarify everything, but given your positive biopsy and symptoms that seem to be relieved when you go gluten-free, it's likely that you have celiac disease, although the normal protocol for diagnosis typically begins with a blood antibody panel, followed by an endoscopy. Let us know how it turns out! After you get the ok to... -
For people with celiac disease hidden gluten in their diets is the main cause of elevated Tissue Transglutaminase IgA Antibodies (tTG-IgA), but there are other conditions, including cow's milk/casein intolerance, that can also cause this, and here is an article about the other possible causes:
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gluten-free British Virgin Islands Travel
Scott Adams replied to Joel K's topic in Traveling with Celiac Disease
Good idea regarding the GliadinX, and I've never been there, but it seems like they should be able to accommodate you if you take careful approach and talk to the chef before you order. Hopefully someone who has been there can comment. There are also many apps on the market for this, but I do well using TripAdvisor for such things. -
Both regrowth of villi, and destruction of villi happen at different rates in different people. This depends on many things, like age, dietary compliance, different immune systems, etc. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality...
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Wheat Germ oil in skin balms
Scott Adams replied to Baba Fats's topic in Gluten-Free Foods, Products, Shopping & Medications
The risk of getting gluten via wheat germ in cosmetic products is very low, but for those who are super sensitive we recommend avoiding such products, as there are many alternatives without gluten ingredients. -
genetic test
Scott Adams replied to Giga221's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day: PS - The genetic test results don't diagnose celiac disease, but can give you what your possible risk-factor is for developing celiac disease... -
Do we have any data on factors that decide which person that carries celiac genes is at higher risk of developing celiac disease? Specifically I'm thinking of diet related factors. Nutrition, vitamins, microbiome, etc.?
Scott Adams replied to heyitsme's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
The number of genes associated with celiac disease is more than two, but there are two main genes that are commonly tested for celiac disease susceptibility. These genes are HLA-DQ2 and HLA-DQ8. HLA-DQ2: The majority of individuals with celiac disease (about 90-95%) carry the HLA-DQ2 gene. HLA-DQ8: Around 5-10% of individuals with celiac... -
This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests...
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The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium. Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend...
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Lundberg
Scott Adams replied to Courtney09's topic in Gluten-Free Foods, Products, Shopping & Medications
I've never heard of anyone having issues with them, and they are labeled gluten-free. Any chance that it might be the high fiber content? -
B12 & choline together?
Scott Adams replied to Zonisamide's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
You can definitely take them together, but with B vitamins it is best to take a full B complex as B vitamins work best when taken together. Have you ever had your vitamin levels checked? -
So gluten-free oats are tolerated by most celiacs, although around 9% also can't have any oats.