Scott Adams
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About Me
Scott Adams was diagnosed with celiac disease in 1994, and, due to the nearly total lack of information available at that time, was forced to become an expert on the disease in order to recover. In 1995 he launched the site that later became Celiac.com to help as many people as possible with celiac disease get diagnosed so they can begin to live happy, healthy gluten-free lives. He is co-author of the book Cereal Killers, and founder and publisher of the (formerly paper) newsletter Journal of Gluten Sensitivity. In 1998 he founded The Gluten-Free Mall which he sold in 2014. Celiac.com does not sell any products, and is 100% advertiser supported.
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Scott Adams reacted to a post in a topic:
Assistance with raised levels
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glutenfreedrugs.com
Scott Adams replied to JoeBlow's topic in Gluten-Free Foods, Products, Shopping & Medications
He did not keep his lists up to date at all...they were more or less unchanged for years, even though the companies who make these drugs will tell you that their ingredients may change at any time. I have nothing against his rating system, or the work he did in the past, but am simply pointing out that maintaining an accurate list of ingredients used in drugs... -
Yes, it sounds like it would be considered to be gluten-free based on their procedures.
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For people with celiac disease hidden gluten in their diets is the main cause of elevated Tissue Transglutaminase IgA Antibodies (tTG-IgA), but there are other conditions, including cow's milk/casein intolerance, that can also cause this, and here is an article about the other possible causes:
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glutenfreedrugs.com
Scott Adams replied to JoeBlow's topic in Gluten-Free Foods, Products, Shopping & Medications
Ok, but did you see the info I posted? The site I posted is a government web site that is free, and is far more accurate. -
Before doing the test you may want to ask the lab whether or not you need to eat gluten before the test is done. I'm not sure what the protocol would be for such a test.
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Scott Adams reacted to a post in a topic:
Do we have some data on serum marker correlation with symptoms?
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Celiac.com 05/04/2024 - Congratulations on taking the proactive step to undergo a celiac disease blood panel and/or endoscopy! While receiving positive celiac results can initially be overwhelming, it's essential to recognize that you... -
Scott Adams reacted to a post in a topic:
Gluten Ataxia and Neuropathy
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Blood Test Results & Experience
Scott Adams replied to mslew10's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful: -
Another marker in the research stage is cytokine levels.
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Scott Adams reacted to a comment:
Is Depression Really a Chemical Imbalance?
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heyitsme reacted to a post in a topic:
Do we have some data on serum marker correlation with symptoms?
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Altocleff reacted to a post in a topic:
Trader Joe's grocery prodcuts
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Currently this is in the research phase, but zonulin levels may one day be a way to measure a gluten reaction:
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Scott Adams reacted to a post in a topic:
Upper left side pain under ribs
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How do I get relief?
Scott Adams replied to Random.user556's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
If your tTg-IgA levels were normal, then your doctor won't likely order any further testing, but, you already have your answer, don't you? Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. This a... -
Scott Adams reacted to a post in a topic:
Books about celiac
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Good to know, and you sharing any other information here would not be "clogging up" our board. Many members and those who search for products will find what you share very useful for years to come.
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Scott Adams reacted to a post in a topic:
Upper left side pain under ribs
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It's hard to say what could have caused you to feel bad after going gluten-free, but the most likely culprit would be getting some gluten contamination (do you eat out in restaurants--this is a common source of contamination), or gluten withdrawals, which most celiacs get to some degree after giving up gluten. This article has some detailed information...
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I agree, and would only add that all manufacturers have quality control cleanings between each run on their machinery, and if things are made using shared equipment must include this on their packaging, even if the risk of actual contamination is very small.
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The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium. Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend...
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Blood test results advice
Scott Adams replied to Effalent's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It makes sense for them to have you keep eating gluten until all tests are completed, and it sounds like you may now be at that stage (but ask them if the plan on more tests). Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet i...